I feel so happy at home...
My daughter left two days after I arrived and went to her school trip to Poland and Israel for a month. She claimed that if she hadn't seen me, she wouldn't have gone to the trip. Luckily we had the chance to see each other... My son is here next to me and he keeps asking if I already got better from MS, but he realizes I don't or, at least, not yet.
My daughter left two days after I arrived and went to her school trip to Poland and Israel for a month. She claimed that if she hadn't seen me, she wouldn't have gone to the trip. Luckily we had the chance to see each other... My son is here next to me and he keeps asking if I already got better from MS, but he realizes I don't or, at least, not yet.
I have been sleeping really bad: maximum 4-5 hours and not even continuous. As I was told, spasticity has worsened, but they say it lasts about 3 months.
I already visited my onco hematologist who asked me to have some blood tests. He said that if I had 38°C fever, then I should go immediately to the ER, because there's the risk of catching opportunistic infections.
Today I was with my neurologist and it was so good to see him!!! Imagine the bond created after 16 years... I'm so lucky for having been supported by him in the transplant... I know many people around the world who don't count with their doctor's support. The exantema still itches a lot, and he said it might be the penicillin that I had to take until today. I told him I've never been allergic to anything and he said that was before but now I'm different. He said I may get better by Thursday and if I still have itchiness next Monday then I should have another blood test. Let's hope it's that, because I'm really suffering... He told me I should be patient, because things are going to be very slow now, but he was happy I already went through the most difficult part.
The physiotherapist came to my house and measured my muscles. I definitely lost muscle mass in my right side while being at the hospital for a month. He gave me a list of exercises that I should do Tuesdays and Thursdays, because he will come home Mondays, Wednesdays and Fridays. He also asked me to press a stress ball all day long and play with PlayDough...
I'm tired, because I don't sleep, because of my itchiness, because of the chemotherapy that will take months before it leaves my body...
My son just told me: "Mom, don't leave me again. You can only leave the country if its with me"... And I promised him it'll be that way. It feels great to be here...