Hi dear friends,
Today is my 1st transplantation Birthday.
This has been a year of accelerated spiritual
growth. It began with three months
wiping off the chemo and its impact, opportunistic infections, physical ups and
downs, hopes and disappointments… It was a year that I lived “isolated” while
life went on.
I never stopped doing my three times a week PT,
and suddenly I started being surrounded by a group of angels. Pablo H. helps me go from one place to another
with so much tenderness and patience.
Claudia R, Claudia and Taly E and Nurit P. jumped into my life for no specific
reason, but they always visit me like fairies that sprinkle their dust and leave
home with a special scent … Thanks to Elin’s idea, I started doing Yoga and
there I found Angeles, the Yoga teacher, and a group of sweet women. Of course I can’t do all the exercises, but
I’m happy if I do 1/8th or 1/4th of them; at least I go out of my
house for another reason that it’s not a medical exam or a doctor’s
appointment. Rafael is the physical education
teacher that is with me twice a week for two hours each. He’s been essential in accepting the
disability which has been so hard for me to do.
I’ve witnessed many people with Remitting
Relapsing and Aggressive Relapsing MS experience miracle improvements after
their transplantation, and even some Secondary Progressive ones. I don’t know if it depends on how long they
have been progressive, their disability status… I really don’t know, but I know
for sure that Heidelberg University Hospital was the best facility I could have
gone to and that fully myeloablative transplantation was right for me, and as
HB’s Dr. Blank said, it’s impossible to know how I would have been now without the
transplantation.
There’s still a year ahead in which I could
experience improvements. So, as long as
it is hard to continue being patient, being surrounded by these new angels in
my life, helps a lot.
I send bright stars to Mellisa, Elin, Phoebe, Bassam,
Maryam, Toni, Monique, George, Carmel, Scott, Wendy and Eddie… We’re so distant apart, but so
close at the same time.
Take care,
PS: Important statement: “No matter how many
times I break down, there is always a little piece of me that says ‘NO, you are
not done yet. Get back up’”.
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Watch this link please.
