Saturday, October 13, 2012

Eisenach, Belgium and Back

We had a beautiful stay in Eisenach with Simone and Frank.  Eisenach is the birthplace of Johann Sebastian Bach and the place where Luther translated the Bible.  Besides being a beautiful city, we were pampered and surrounded a lot by good vibes.
Then we went to Belgium to Pepa and Wim's house.  They made us feel like princesses... They made their typical mussels plate which was delicious! This photo is from Antwerp :o)

After a magical week we finally came back and had the long waited appointment. Dr. Hillengass explained everything about the transplant and I had to sign a Consent Form.    The doctor said that stem cells had to go under many regulations before being reinserted even if they were my own.  He also said he prayed for his patients and that he will pray for me. I will be admitted to hospital next Friday so we will definitely have to postpone our tickets back home :o( Again, man proposes and God disposes...  I will be hospitalized for three weeks, then I will have some appointments as an outpatient and we will go back to Chile hopefully around November 16th... I will arrange my bagagge before getting hospitalized because I know I will be extremely weak after the transplant. 
Keeping my mood high is very complicated.  Dr. Hillengass told me there was a psychologist specialized in people undergoing stem cell transplants, so it'll be very good to talk to her.
I love this place...  Getting out of the terrace and watching the castle still amazes me...


Friday, October 5, 2012

A Pause in the Journey

I want to tell you that the transplant intends to stop the progression of the disease. It is unrealistic to think that I will recover from all the symptoms.  Stopping MS is urgent as it progresses as we speak. After recovering from the harsh chemo, which will be some months later, they say some symptoms can reverse depending on the damage done on the myelin sheath. I don't want to have any expectations about  it, because it will be very disappointing if they don't come true.  
This forced halt turns the agony of the long wait into a bittersweet part of the journey.  From one side I really enjoy being in new places, but from the other, I would love to be home with my kids... 

As you know, we will be visiting Eisenach and Antwerp in Belgium so I decided to put a pause to healingreen until next Friday. 
See you then...



Change of Plans

We were going to have the appointment with the doctor on October 16th, but after insisting a lot, we got the appointment for the 12th.  Dr. Hillengass will  explain to us the whole procedure and I guess the transplantation will take place during the week after.  I'm sorry, but we will have to postpone going back to Chile.  I guess we will only know the exact date on the 12th after asking the doctor all the details. I miss my kids so much... but as I mentioned before: "man proposes and God disposes"...

We found this in the 6th floor of the guesthouse we are staying at...
Yesterday it rained a lot, so we stayed home, then we went to the supermarket and we bought the train tickets because we will go to Eisenach to visit Simone and Frank this weekend...This is the view from the apartment "between" rains.

We are going to take Pepa and Wim's word and since we have free days next week, we will visit them in Belgium.

It would have been fantastic to take the October 28th plane... but it's not going to be like that :o( We are here and we are almost through...