The reason why I haven’t posted anything since
May is because I haven’t experienced any benefit either. This has been the most difficult year of my
life. I know that there are people in a much
worst condition than me, but I can’t help it: I miss so much myself from not-so-long ago. I wish someone knew what
determines or what avoids the progression and feeling fatigued, besides what we all know: sleeping
well, good nutrition, exercise, rest, avoiding stress and heat… Until May I
went one step forward and two steps back, but suddenly everything “seemed” strange. My physiotherapist swears that besides some
days in which I was extremely fatigued, my disease has not progressed. I had tonsillitis,
and became voiceless. I experienced
extreme dizziness. I couldn’t even stand up some days and they run the cranial
nerve VIII test. It turned out I did have some deficiency (??) I still don’t know why the dizziness comes
back some days, but there are stable days too.
In order to eliminate any possible “something” in the brain, I had an
MRI that showed even smaller scars than on March's, which according to my neurologist could
translate in eventually some improvement.
He will attend Ectrims 2013 next month in Copenhagen. Hopefully there will be anything new…
Happy springtime southern hemisphere and happy
autumn northern one.
Take care
