Saturday, October 26, 2013

1st Year

Hi dear friends,
Today is my 1st transplantation Birthday.  
This has been a year of accelerated spiritual growth.  It began with three months wiping off the chemo and its impact, opportunistic infections, physical ups and downs, hopes and disappointments… It was a year that I lived “isolated” while life went on.
I never stopped doing my three times a week PT, and suddenly I started being surrounded by a group of angels.  Pablo  H. helps me go from one place to another with so much tenderness and patience.  Claudia R, Claudia and Taly E and Nurit  P. jumped into my life for no specific reason, but they always visit me like fairies that sprinkle their dust and leave home with a special scent … Thanks to Elin’s idea, I started doing Yoga and there I found Angeles, the Yoga teacher, and a group of sweet women.   Of course I can’t do all the exercises, but I’m happy if I do 1/8th or 1/4th of them; at least I go out of my house for another reason that it’s not a medical exam or a doctor’s appointment.  Rafael is the physical education teacher that is with me twice a week for two hours each.  He’s been essential in accepting the disability which has been so hard for me to do. 
I’ve witnessed many people with Remitting Relapsing and Aggressive Relapsing MS experience miracle improvements after their transplantation, and even some Secondary Progressive ones.  I don’t know if it depends on how long they have been progressive, their disability status… I really don’t know, but I know for sure that Heidelberg University Hospital was the best facility I could have gone to and that fully myeloablative transplantation was right for me, and as HB’s Dr. Blank said, it’s impossible to know how I would have been now without the transplantation.
There’s still a year ahead in which I could experience improvements.  So, as long as it is hard to continue being patient, being surrounded by these new angels in my life, helps a lot.
I send bright stars to Mellisa, Elin, Phoebe, Bassam, Maryam, Toni, Monique, George, Carmel, Scott, Wendy and Eddie… We’re so distant apart, but so close at the same time.
Take care,

PS: Important statement: “No matter how many times I break down, there is always a little piece of me that says ‘NO, you are not done yet.  Get back up’”.

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